It has been a constant struggle to get any doctors to acknowledge my concerns about Wallace’s low muscle tone and motor delays. They like to get you with “he will grow out of it” or “he looks fine to me.” We saw a physiatrist today and though he confirmed the low muscle tone is throughout his body and listened to all my concerns and read the list of past and present issues I brought with me, I still felt waved off.
I was told to let him know if he loses any skill or anything gets worse, make a follow up appt in 4 months, and get an OT evaluation with the hospital. He said it seemed excessive to put him through a work up of blood tests and MRIs when he was pretty much caught up. Of course I don’t want my child to go through painful and scary things, but I want to find out the cause of his low muscle tone and be able to get him any help he needs. I have this gut feeling that though he has nearly caught up now, he will plataeu and the gap between his abilities and his peers will become apparent again.
This parenting gig is exhausting.