When I was starting to learn about Chairi malformation, I found myself on YouTube. I have watched all kinds of videos from medical lectures to descriptions of surgery to physical therapy ideas. What I clung to the most were the videos of personal experiences, and I didn’t find many of them.
So I took the leap and decided to make my own channel. I wanted a record of what I was going through, a place to vent the rollercoaster of emotions, and possibly a way to connect with others. Just like this blog has been for almost 10 years.
If you’d like to watch my rambling, unedited, far from professional videos about my experience with Chiari, migraines, brain surgery, and mystery health conditions, please go check out Brain Squeeze and give me a follow.