Tag Archives: chiari

Brain Squeeze

When I was starting to learn about Chairi malformation, I found myself on YouTube. I have watched all kinds of videos from medical lectures to descriptions of surgery to physical therapy ideas. What I clung to the most were the … Continue reading

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Fatigue

Watch the TED talk or the movie Unrest by Jennifer Brea. It’s hard but it’s a glimpse into what I deal with and more people need to be aware of the severity of ME/CFS. Or even that it’s a real … Continue reading

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Me Update

I haven’t been on here much and can’t recall what I last wrote about and what details I shared. In November I was diagnosed with chiari malformation and told I should have decompression surgery. I was originally scheduled for mid … Continue reading

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This Post Is About My Hair

I haven’t shaved my head since before we moved in late October. Partly because I have been busy. Partly because the new place doesn’t have a working outlet in the bathroom. Partly because it’s cold in Michigan. Partly because leaning … Continue reading

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Still Standing

Image from @how.u.feeling If you ask me how I am, I don’t know if you want to hear the truth or just reassurance that I am still trucking along. I don’t want to seem like I’m whining and I don’t … Continue reading

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