Tag Archives: chiari

Freckle Fiasco

Posted on May 5, 2022 by JennP

Regarding my last post, WordPress is looking into my lag and performance issues with the app. I even made a video of my screen while I wrote a test blog post so they could see in real time what it … Continue reading →

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MRIs, again.

Posted on April 2, 2022 by JennP

I’m still here. Just getting through each day as best I can. I have my positive moments and the days where things feel like they flow. But really, it is hard. I’m no closer to answers about my left leg … Continue reading →

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Brain Squeeze

Posted on June 12, 2021 by JennP

When I was starting to learn about Chairi malformation, I found myself on YouTube. I have watched all kinds of videos from medical lectures to descriptions of surgery to physical therapy ideas. What I clung to the most were the … Continue reading →

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Fatigue

Posted on February 5, 2021 by JennP

Watch the TED talk or the movie Unrest by Jennifer Brea. It’s hard but it’s a glimpse into what I deal with and more people need to be aware of the severity of ME/CFS. Or even that it’s a real … Continue reading →

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Me Update

Posted on March 25, 2020 by JennP

I haven’t been on here much and can’t recall what I last wrote about and what details I shared. In November I was diagnosed with chiari malformation and told I should have decompression surgery. I was originally scheduled for mid … Continue reading →

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This Post Is About My Hair

Posted on January 19, 2020 by JennP

I haven’t shaved my head since before we moved in late October. Partly because I have been busy. Partly because the new place doesn’t have a working outlet in the bathroom. Partly because it’s cold in Michigan. Partly because leaning … Continue reading →

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Still Standing

Posted on January 10, 2020 by JennP

Image from @how.u.feeling If you ask me how I am, I don’t know if you want to hear the truth or just reassurance that I am still trucking along. I don’t want to seem like I’m whining and I don’t … Continue reading →

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