Tag Archives: chronic fatigue

Brain Squeeze

When I was starting to learn about Chairi malformation, I found myself on YouTube. I have watched all kinds of videos from medical lectures to descriptions of surgery to physical therapy ideas. What I clung to the most were the … Continue reading

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Watch the TED talk or the movie Unrest by Jennifer Brea. It’s hard but it’s a glimpse into what I deal with and more people need to be aware of the severity of ME/CFS. Or even that it’s a real … Continue reading

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Me Update

I haven’t been on here much and can’t recall what I last wrote about and what details I shared. In November I was diagnosed with chiari malformation and told I should have decompression surgery. I was originally scheduled for mid … Continue reading

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Still Standing

Image from @how.u.feeling If you ask me how I am, I don’t know if you want to hear the truth or just reassurance that I am still trucking along. I don’t want to seem like I’m whining and I don’t … Continue reading

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Fumbling Along

I have been feeling really bad for about a week. My whole body hurts to the point it is hard to sleep some nights. I am so exhausted and fatigued. I am snapping and irritable and down. I have some … Continue reading

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